Lyme Disease and Personal experience topics

Posts tagged ‘lyme disease patients’

Update

I know it’s been awhile since might last post, but I’ve been going through alot of treatment. It’s hard to write when you feel crappy. I’ve been off antibiotics for a couple of weeks. My LLMD wanted to see what symptoms I have off the drugs. It’s been nice not taking so many pills. My joints and brain are doing better, but my fatigue, stomach and eyes are still crappy. Come a long way, but still have some ways to go I think.

I have been doing the Myers coctail. I think it’s helped a little. Well see how it goes the more I use it. We’ll I’m starting to run out of brain power so I’m going to sign off!

take care people!

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Twitter Lyme Voice

My first impressions when I heard about Twitter is, that I don’t get it. It seemed stupid and a big waste of time. What it the point of twitter, besides letting stalkers know where you are. Time past and I forgot about the huge technology craze on the World Wide Web. One day my dad asked me how to set up Twitter, because a bussiness associate requested him. I rolled my eyes and went on there. I signed myself up so I could tell my dad how to do it. He went on there for awhile, got bored and went back to facebook. lol

By me signing up, I got hooked. I started following a bunch of celebrity, venting on there when I was upset and talking about my causes. This includes of course Lyme Disease. This is a great platform to get Lyme Disease out there, so I’m now hooked on Twitter. Why?!! lol. It really is a good place to have a voice. For someone who hated Twitter since it came out of the wood work, I completely recommand it!

https://twitter.com/#!/truegirl81

Check me out on there! And lets get Lyme Disease out there people!

Ben Stiller, The Lazy Lyme Activist

I went wikipedia to see what the site says about Lyme Disease and in it, it lists the celebrities who have it. The most famous out of all of them is Ben Stiller and yet I have never heard of him having Lyme Disease. With all of the celebrity that he has, he chooses to keep this disease private. He has the opportunity to help and change the way Lyme disease is handled, and yet he does nothing. I’m so upset and frusterated with these lazy celebrities who have Lyme and choose to do nothing. There are so many of us who try to get Lyme disease out there in the public eye, but we get shotdown or are left unnoticed!  I wish I had his email to give you guys this time, but I couldn’t find it. You can still contact Karen Allen on my previous blog about her. If someone has his email please pass it onto me, so I can post it on here. If I do get it, please be respectful in the letter.

I wish I had better news than this, kinda depressing. Stuff like this makes me feel so discouraged. 😦 I wish we had a celebrity who would fight for us.

Take care!

Lyme Disease

I remember saying what should my general topic be on my blog page. Little did I know, it revealed itself to me months later. I have been very sick for the past 8 years and could never figure out why. My condition has been deteriorating over the years and leaving me frustrated. After yet again another blood test and meeting with a specialized doctor, I’ve been told I have Lyme Disease. It’s finally good news, yet also sad. It makes me shake my head at the medical community. I’m finding out very quickly that doctors are either closed minded, no nothing about it or are too afraid to treat it because the risk of losing their license. The IDSA has biased and self serving guidelines that if any doctor goes against it, they can be reported and lose their license. The amount of censorship that the IDSA is doing is amazing to me. If they spent half the time putting this energy towards research, we would already have a cure and more public awareness.

I would like everybody to watch a documentary for me. It gives a clear message about what Lyme disease actually does. Go to http://www.hulu.com and type in “Under Our Skin.”

There is also a protest on the IDSA’s facebook page right now. Please go to it and ask them to change the guidelines on Lyme Disease. http://www.facebook.com/IDSociety/posts/357764004239867

There is also a petition on helping Lyme Disease Patients. Please sign it!

http://www.change.org/petitions/subjective-symptoms-after-treatment-of-lyme-disease

Stephanie