Lyme Disease and Personal experience topics

Archive for January, 2012

Eye Doctors Getting Lyme Memo

Because of Lyme Disease, my dad has eye problems and has to go in often to get his eyes checked. My dad was telling him how he has Lyme disease and to my dad’s surprise, he knew about it. The eye doctor said they’re getting memos sent out to all the specialist saying if you’re having trouble diagnosing the eye problem, give them the Western Blot test. The western blot is still not a 100%, but at least this is a big step. I was excited to hear about this. We still have a long way to go, but I thought this was a positive step in the right direction.

I tried to find out which organzation sent this memo out but couldn’t get a definite answere. It wasn’t the IDSA or the CDC. If someone finds out, please let me know so I can update my blog, thanks!

Take care Lyme People!

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Tricks to Help Lyme Digestion

I’ve had to learn the hard way on what’s the best way to help your digestion. It got so bad I had to go to the e.r., which didn’t help at all. I’ve never had this problem before, so I didn’t know what to do. I took toxic stuff from the doctors that had active ingrediants equivalent to water coolant in air conditioners. I also relied on ax-lax that the colon doctor said I would probably have to take for the rest of my life. I brokedown in his office right there when I heard that. That stuff is really bad on your body long term, so you think an expert would have other ideas. Mind you, this was before I knew I had Lyme disease, so I thought I was slowly dying. My body was slowly shutting down for no reason. Then my mother and I went to Florida to see a world renown doctor. Towards the end of my appointment, he suggested a natural way to help with my digestion. It’s a powder called, “Calm.” For me, it didn’t cure the blockage, but it keeps things moving. I think because I didn’t act quick enough with the Lyme Disease, I’ll have problems with my digestion for the rest of my life now. 

You start with 1 tsp once a day in hot water(needs to be warm water to activate live ingrediants). Let it fizz, then stir. You hold your breath and drink. 🙂 If you feel it’s still not helping, up it to 2 tsp’s. Because I have so much blockage, I have to do 2 tsp’s, every other day taking Magnesium and 1 month to have a colonic done.

I have found this is the most natural way to do it, especially long term. I hope this helps someone, I sure could of used this a long time ago. Take care Lyme People!

Antibiotic Resistant Lyme

Normally I would write a little and give links that inform Lyme people, but the UFC is on so I can’t write too much at the moment. lol. I thought it was at least important to give you this link. Please check it out.

http://online.wsj.com/article/SB10001424052970204331304577144853241744454.html

Take care Lyme people and I promise I’ll write more next time!

Karen Allen from Indiana Jones has Lyme Disease

I found out yesterday from one of my support groups message boards that Karen Allen has Lyme Disease. For those of you that don’t know, she was in Indiana Jones and Superman. She made a radio appearence promoting a thing called, “The Ultimate Zapper.” She claims it can cure Lyme Disease. I find it hard to believe, but to each his own.  What really made me mad was that this celebrity has Lyme Disease and doesn’t promote and raise awareness about it enough. Lyme disease is usually musseled by the media and having a celebrity talk about it would really help us. Shame on her for not talking about it. She does a one time appearence on a low budget radio show, that barely anyone listens to and thinks she helping?!

Look at Jenny McCarthy with Autism, she has been a pioneer for it. She has gotten it out there in the media and raised awareness about it. It just makes me so angry because for the rest of us it’s hard to get Lyme Disease out there in the public and media. If I had that celebrity I would be talking about it all the time in the media and trying to raise money for it.  I wish I could shake her and say please help us! For those who would like to send a polite and respectful letter to her asking for help, you can contact her through this email. karenallenfiberarts@gmail.com . Please, Please be polite. We would like her to help us with Lyme Diesase awareness.

Her Radio interview

http://www.phiyakushi.com/miracles/audio/20100523_Karen_Allen.mp3

Take care Lyme people and lets make a positive difference in the world.

Lyme, Lyme…… What was I saying?

Thinking lastnight on how I want my life back. Before Lyme took over my body I used to be very smart and had a little bit of a photographic memory. Now I can’t even remember what I had to eat yesterday. I want to finish school and do alot with my life. It’s just not fair how life works out.

Hopefully this medication will improve my life. What if it’s just a little bit and I’m stuck like this? These negative dialogs in my head are not useful, but it’s hard to stop them from seeping into your head. It’s hard to be stuck in limbo, which alot of Lyme people understand.  Then on top of it, we get called crazy or depressed. I just wish I could think of something to get chronic Lyme Disease recognized and the process of getting a cure going. Sigh. Dare to dream.

Take care my Lyme people and hang in there. This disease sucks but we will fight it.

IDSA Response to facebook protest

So the IDSA finally reponded. They denied everything, which is not unexpected. I’m still sad by there continue efforts to block Lyme advancements. This is another slap in the face, but one day they’ll be known as the black cloud over Lyme Disease. Here is there full response.

http://www.lymedisease.org/news/touchedbylyme/idsaresponse.html

Take care Lyme people and keep fighting.

Lyme Disease

I remember saying what should my general topic be on my blog page. Little did I know, it revealed itself to me months later. I have been very sick for the past 8 years and could never figure out why. My condition has been deteriorating over the years and leaving me frustrated. After yet again another blood test and meeting with a specialized doctor, I’ve been told I have Lyme Disease. It’s finally good news, yet also sad. It makes me shake my head at the medical community. I’m finding out very quickly that doctors are either closed minded, no nothing about it or are too afraid to treat it because the risk of losing their license. The IDSA has biased and self serving guidelines that if any doctor goes against it, they can be reported and lose their license. The amount of censorship that the IDSA is doing is amazing to me. If they spent half the time putting this energy towards research, we would already have a cure and more public awareness.

I would like everybody to watch a documentary for me. It gives a clear message about what Lyme disease actually does. Go to http://www.hulu.com and type in “Under Our Skin.”

There is also a protest on the IDSA’s facebook page right now. Please go to it and ask them to change the guidelines on Lyme Disease. http://www.facebook.com/IDSociety/posts/357764004239867

There is also a petition on helping Lyme Disease Patients. Please sign it!

http://www.change.org/petitions/subjective-symptoms-after-treatment-of-lyme-disease

Stephanie